Name

Blue Farm

Description

Welcome to Blue Farm!

Hello we are the Lee's. My channel used to be about farm and gardening. However my youngest son Daxie (5yrs old) was recently diagnosed with mucopolysaccharidosis III A or Sanfilippo Syndrome Type A. Daxie suffers from a rare genetic disorder that makes it so he cannot breakdown carbohydrates and sugars. End result is they build up in his body becoming toxins and they cause permanent body and brain damage. Sanfilippo is often referred to as childhood dementia. The reason being is Daxie will loose all of his abilities. His ability to walk or eat by mouth. and the saddest one yet is Dax has already lost his speech.

Due to my sons condition we had to rehome our farm and refocus our time and energy to our kids. There is no cure for Sanfilippo syndrome. When we got the terminal diagnosis they said take him home and love him.

Our new family goal is to make as many memories as we can.

https://curesanfilippofoundation.org/Dax

BlueFarmPNW@gmail.com

Subscribers

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